It’s my 21st Birthday today – and I’m spending it… in Basildon Hospital…? Cheers Crohn’s disease!

Yes, for the past 6 weeks, I’ve been in hospital due to my Crohn’s Disease. My entire 2018 so far has been spent in here breathing the same air (bar a few days).

I’ve been without food for the near whole six weeks… a liquid diet for the first week, and completely ‘nil by mouth’ (not even water) for nearly the whole other 5 weeks. I’m still nil by mouth today, meaning no cake… no candles… just 100% pure ‘TPN’ feeding directly into my veins for 18 hours a day. What it’s like to go without eating or drinking for so long, is difficult to put into words.

And after all this time spent here, I’m still not done…

I’m currently waiting for a transfer to a specialist hospital in order to have a procedure called an ‘ileostomy’ to remove the diseased part of my bowels – and hopefully give me my life back!

Am I scared? Not really. Am I fed up with being in hospital? A little. The only thing that I really care about right now, is not having to suffer anymore. At my worst, Crohn’s Disease meant any tiny bite of food would give me horrific pain. I’m hopeful those days will soon be behind me.

It IS my 21st Birthday however, so I do have some things to celebrate – despite not being able to eat any cake…!

– I’m still here, and I’m still fighting ✅

– My needle phobia is practically gone ✅

– I got my ‘Key to the door’ – A radar key that gets me into every disabled loo in the country! (Super handy for me!) ✅

– Hopefully in the next few weeks, I’ll be having my surgery, and starting the process to gain my life back ✅

Whether you are fighting an invisible illness, know someone who is, or are just reading this blog out of interest, know this: No one ever fights alone. There are so many people fighting the same battles, despite how lonely it feels.

Your illness does not define you. You define your illness. Despite being in hospital for 6 weeks, I’ve kept so busy taking up hobbies I’ve never had time to, working my butt off to finally get a Couponing book written (which is very near completion!), and raising awareness for this horrible disease, despite the advice being to rest.

What’s would be the greatest gift for me this year? Awareness! Invisible illnesses such as Crohn’s & Colitis devastate 100,000s of lives – hence this blog. Let’s not stop shouting until a cure is found. Let’s continue fighting together.

I’ll keep you updated with my progress, and hopefully once I’ve had my surgery… i’ll be catching up on the copious amounts of free food i’ve missed!

If you’re new here, see my original Crohn’s blog for MoneySavingExpert – and for more information, see the Crohn’s & Colitis UK website.

35 CommentsClose Comments

35 Comments

  • Elysia Benn
    Posted 21st February 2018 at 7:56 am 0Likes

    Hope you feel better soon Jordon! Happy Belated Birthday! I have Lupus, so I know exactly how you feel.

    • Posted 21st February 2018 at 10:33 am 0Likes

      Thank you Elysia! I’m so sorry to hear that you are battling too. Stay strong, lets fight together! 🙂

  • Irene Wright
    Posted 21st February 2018 at 9:20 am 0Likes

    Happy birthday brave/courageous lad! You have my respect for your attitude to your difficult life. Fortunately none of my family have your disease but I do know others who do have Crohn’s – not nice. Good luck with your comping. Chin up a cure is being sorted in the not too distant future. Love and prayers. Irene

    • Posted 21st February 2018 at 10:35 am 0Likes

      Thank you very much Irene! Of course – a positive attitude honestly makes a world of difference. Dwelling and laying here in sorrow would only make it worse for me.

      Best wishes for those you know suffering! 🙂

  • Jackie Foster
    Posted 21st February 2018 at 9:27 am 0Likes

    Happy 21st Birthday Jordon, having suffered along term illness myself I can completely empathize with your situation , sometimes its very hard to stay upbeat and positive , I wish you all the luck in the world and fingers crossed for a positive future

    • Posted 21st February 2018 at 10:36 am 0Likes

      Thank you Jackie, and sorry to hear you have been battling too. It can be a real struggle, and I have some off days, but found that dwelling only makes it worse – life is far too short!

      Hope you are in remission and coping with your illness.

  • Margaret Surrey
    Posted 21st February 2018 at 9:34 am 0Likes

    Happy Birthday Jordan

  • Georgina Jacobs
    Posted 21st February 2018 at 9:41 am 0Likes

    Wonderfully written article with a great sense of humour and inspiration. Hope you have a wonderful 21st and good luck for the future 🎉😀

    • Posted 21st February 2018 at 10:37 am 0Likes

      Thank you Georgina! That’s very kind. Hope to be fighting fit soon 🙂

  • Darren
    Posted 21st February 2018 at 9:44 am 0Likes

    Happy birthday Jordon – hope you get home soon and catch up with all the eating of cake you are missing!

    • Posted 21st February 2018 at 10:38 am 0Likes

      Thanks Darren! There will be a LOT of cake that’s for sure..! 😉

  • Nikki, Glam & Geeky Mum
    Posted 21st February 2018 at 10:20 am 0Likes

    Happy birthday Jordan, pleased to see you keeping positive despite no cake, so here’s an emoji one for you! 🎂

    • Posted 21st February 2018 at 10:39 am 0Likes

      Thank you Nikki! Positivity without cake is very hard you know..! 😉

      My emoji mouth thanks you! 😀

  • Jude
    Posted 21st February 2018 at 10:26 am 0Likes

    Happy Happy Birthday Jordon – glad to see good old Baz are looking after you. xx

  • Amy
    Posted 21st February 2018 at 10:57 am 0Likes

    Happy birthday Jordon,

    I too have crohns disease and have spent many a time in hospital (very productive for competitions) and 2 years ago also spent 6 weeks not allowed to eat only allowed prescription drinks and water. It’s not very fun.

    Unfortunately as soon as they allowed me to eat, I had an obstruction!

    Hope everything works out for you soon!
    Positivity is the key!

  • Frances Brown
    Posted 21st February 2018 at 11:47 am 0Likes

    Happy Birthday Jordan. My mum has had this horrendous disease for 25 years now and has had 5 operations, however she is still here and fighting everyday! There are new breakthroughs in medicine everyday and I hope we are close to seeing off this disease. But in the meantime we can at least give kindness and support xx

  • Michelle Whyte
    Posted 21st February 2018 at 2:01 pm 0Likes

    Happy 21st Birthday…are you sure you are just 21? Such a wise head on young shoulders. The world needs more like you x

  • Debbie Hawkins
    Posted 21st February 2018 at 4:30 pm 0Likes

    Happy 21st birthday Jordan. It’s truly humbling to read what you’re going through with such positivity. I wish you all the luck in the world that this is the start of a better life x

  • Jason Tolliss
    Posted 21st February 2018 at 7:48 pm 0Likes

    Happy birthday Jordan

  • Rex
    Posted 21st February 2018 at 8:15 pm 0Likes

    Your positivity is infectious and I have no soproblem by you’ll see this through with flying colours. Best of luck when th the operation and most importantly Happy Birthday!!

  • Dave Robinson
    Posted 21st February 2018 at 8:25 pm 0Likes

    Best wishes Jordan, you’re an inspiration with your positive outook on your illness and life in general.
    Hope you make a good recovery and can lead a normal life, sooner rather than later.

  • Venessa
    Posted 21st February 2018 at 8:32 pm 0Likes

    Happy 21st birthday Jordon!!! 🎉🎁You are amazing and deserve all the very best! 🎁This is going to be your year to shine☀️

  • Holly Brazier
    Posted 21st February 2018 at 9:26 pm 0Likes

    You are an inspiration to us all, your a brave young man looking on the positive although you are suffering so much. I pray you recover quickly and you know how special and loved you are. Loved reading the blog keep up the good work.

  • Ellen Murray
    Posted 21st February 2018 at 9:44 pm 0Likes

    Happy 21st birthday Jordon wishing you all the very best for the future xx

  • Allison Martin
    Posted 21st February 2018 at 10:25 pm 0Likes

    Happy Birthday, Jordon! Keep fighting…

  • Sue Grace
    Posted 21st February 2018 at 10:27 pm 0Likes

    Happy 21st Bierthday Jordan. You are an inspiration. Hope all goes well. Xxxx

  • Alice
    Posted 22nd February 2018 at 12:28 am 0Likes

    What an inspiring post 💞 Wishing you the most amazing birthday. Alice x

  • Debi Gillard
    Posted 22nd February 2018 at 8:20 am 0Likes

    Happy Birthday – you will get this sorted. You no doubt already know what you can and can’t eat (it’s different for everybody). The op will help and hopefully it will be the last one you need. Probably the only ward in the hospital where if you let off a fart everyone cheers because it means things are on the up!

  • Sharron
    Posted 22nd February 2018 at 11:08 am 0Likes

    Your strength and determination is truly remarkable Jordon. Thinking only positive thoughts for you on this very special birthday. You’re an inspirational young man. All the best xxx

  • Debbie Örer
    Posted 22nd February 2018 at 3:02 pm 0Likes

    So sorry to hear that you are so unwell and have been without food for so long! Wishing you a speedy return to solid food and being able to actually drink something again. Love your positive attitude to life, it does you credit and will make your recovery much faster too, I’m sure. Happy Birthday to you xx

  • Gaby Kroh
    Posted 22nd February 2018 at 7:33 pm 0Likes

    Happy birthday man! Get better soon!

  • Jane Davies
    Posted 23rd February 2018 at 2:54 pm 0Likes

    Happy 21st Jordan. My daughter who also turned 21 recently (and has Ulcerative Colitis) is running the Bath Half Marathon on the 4th March to raise funds for Crohns and Colitis UK. Keep strong and I hope you make a speedy recovery from surgery.

  • Lauren Turson
    Posted 23rd February 2018 at 6:34 pm 0Likes

    Happy Birthday from a fellow Piscean. Best of luck to you — hope you beat this!!

  • Jamie
    Posted 25th February 2018 at 12:56 am 0Likes

    Have a look at https://crohnrevolution.de/ it’s in German but google will translate. The blogger has no more pain after years of suffering thanks to changing his diet. Good luck!

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Jordon Cox - Coupon Kid - Money Saving Tips Vouchers Coupons Bargains Public Speaker
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